IWMF-LLS Strategic Research Roadmap Initiative

Be part of an international effort to conquer Waldenström’s macroglobulinemia (WM)

With your help, the Australian WM patient support group, WMozzies is looking to raise USD$150,000 over the next 2 years in support of the IWMF-LLS Strategic Research Roadmap Initiative. 

With thanks to an incredible supporter, the first $40,000 in donations will be dollar matched up until 30 June 2020. By donating today, your gift will have twice the impact.

Be part of the next WM breakthrough and ensure people living with WM all around the world are given the best possible chance at conquering this disease 

Help ensure people living with rare blood cancers aren’t left behind 

Waldenström’s macroglobulinemia (WM) is a rare and incurable form of blood cancer that typically affects older adults. WM normally develops over a long period of time and can significantly impact a person’s quality of life once diagnosed.   

WM receives lower levels of research funding than many other forms of blood cancer and there are fewer opportunities for patients to access clinical trials. Therefore investment in research is desperately needed to understand the drivers of WM, and to develop more targeted and effective therapies for people living with WM. The international WM community is coming together to co-fund new and exciting research through the IWMF-LLS Strategic Research Roadmap Initiative. 

IWMF-LLS Strategic Research Roadmap Initiative

The International Waldenström’s Macroglobulinemia Foundation (IWMF) and The Leukaemia and Lymphoma Society (LLS) recently announced the third IWMF-LLS Strategic Research Roadmap Initiative to help further knowledge in four key domains of WM research:

  • Genomics and epigenomics
  • Signalling
  • Immunology/immunotherapy
  • Bone marrow/tumour microenvironment

The IWMF supports research to better understand the biology of WM, with the goals of improving quality of life for WM patients, discovering new treatments, and ultimately, finding a cure. Read more about the IWMF's research strategy here. 

Under the Roadmap Initiative, the IWMF awards Roadmap grants for 2-4 new research proposals each year, depending on funding availability.  

All proposals are reviewed by an independent committee composed of selected members of the IWMF Scientific Advisory Committee and other experts in the field.

Life’s good for Michael thanks to “a pill for life” 

Michael van Ewijk “hasn’t looked back” since starting a new treatment on an international trial almost five years ago. 

It involves taking three tablets first thing each morning. He was the first Australian to have this new treatment as a monotherapy and it’s been lifesaving. 

“My life is normal now,” said Michael, 69, of Milton in regional NSW, who was diagnosed with Waldenström’s macroglobulinaemia (WM) in May 2005.  

“I’m still on the trial and it still works!”

Read about Michael’s journey with WM and his treatment experiences 

A big thank you to our Supporters

The real heroes who are kindly helping us achieve our goal

$26.85k

Peter Carr

I’m grateful for the opportunity to dollar match all donations made towards this important research initiative prior to 30 June 2020. To help us reach our goal, I would like to extend this offer for another 2 months. Thank you for your support.

$108

F And S Grinlinton

$108

Anonymous

$131

William Ryan

$103

David M

Happy birthday Dad. Hopefully this all helps find a cure

$50

Jean Smith

$21

Jenny Davis Oam

I can't fault my treatment for WM, it had the best possible results and I was well supported all the way.

$42

Chris

$52

Robert Chenhall

$42

Salvatore Maurici

$261

James Houston Carruthers

$108

Klaus Reh

Thank You for the support and information given to me over the last 5 years.

$209

Jan

$2.02k

Colin Johnston

$209

Wayne Holden

$108

Anonymous

$108

Peter Smallwood

$108

Anonymous

A horrible disease that needs more research

$31

Anonymous

$52

Cassandra Betts

$108

Endre & Vicky.

Happy to contribute to such a great cause.

$400

Ivan Carter

$10

Belinda Greenwood

$108

Morgan

$104

Ailsa Cooke

$200

Alister Freese

$108

Peter

Go Mozzies

$104

Bev Novak

$515

David Rabie

I was diagnosed in 2016 and have been on a trial ever since. Thanks to Dr Judith Trottman and her team at Concord Hospital i have a wonderful quality of life. I will be forever grateful.

$108

Paul Turton

$50

Wendy

$3k

Warden Family

The Warden family warmly supports this vital global WM research

$108

Graeme Mclaren

I was diagnosed in 2016 with WM. Still going strong!

$1.02k

Anonymous

$50

Bill Spawton

$52

Kathy Fulham

Amazing support group that have helped me get through the last few years. Thank you

$16.85k

Australian Wmozzies

$26

Rowan Tetu

Such vital and important work, may a cure be found soon.

$52

Stephanie Moran

Fully supportive of this international effort to give WM the boot!

$10

Anonymous

A small contribution to a vital cause